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Community to rally behind six-year-old in need of medical treatment

Six year old Lilly Lecuyer suffers from spastic quadriplegia cerebral palsy and is need of a stem cell transplant in the United States
2018-01-09 Lilly Lecuyer
Six-year-old Lilly Lecuyer has spastic quad cerebral palsy and needs a stem cell transplant in the United States. Submitted photo

A fundraiser to help a six-year-old Elliot Lake child is set to take place Feb. 10.

Lilly Lecuyer suffers from spastic quadriplegia cerebral palsy. She is a SK/Grade 1 student at Central Avenue Public School. Because of this disease, she is in need of a stem cell transplant. The family is hoping to take her to the United States for the transplant to help Lilly's quality of life. Stem cell transplant involves replacing damaged or diseased stem cells with healthy stem cells. 

One stem cell transplant costs roughly $11,000 and Canada does not currently provide this treatment, so Lilly and her family must travel to the United States for the procedure.

"We are hoping that with this treatment, Lilly will get a better quality of life, become less stiff and improve her hand-eye coordination," her father Adrian said through the GoFundMe page he has set up for his daughter. "Maybe even one day walk unaided."

Spastic quadriplegia cerebral palsy is described as the loss of the use of the whole body and is the most severe of the three types of spastic cerebral palsy, marked by the inability to use the legs, arms and body.

Seeing as Elliot Lake is a close knit community, Lecuyer has reached out to the community on Facebook for the fundraiser for his daughter. The response from local businesses has been high.

The fundraiser will be happening at the Grace Christian Centre Feb. 10 between noon and 4 p.m.

"We will be raffling off different prizes, 50/50 draws and games for kids to play and win prizes," he said. "There will be face painting and spreading awareness on cerebral palsy."

For more information, Lecuyer is asking anyone to contact him through Facebook or through the event Facebook page, titled Lilly's Cerebral Palsy Awareness Bash.



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